Parents’ experiences with requesting carrier testing for their unaffected children

Visual Scanning in Very Young Children with Autism and Their Unaffected Parents

This study of gaze patterns in very young children with autism and their parents included 23 cases (with 16 fathers and 19 mothers) and 46 controls (with 14 fathers and 28 mothers). Children (mean age 3.3 ± 1.5 years) with autism met DSM-IV and ADOS-G diagnostic criteria. The participants' gaze patterns were recorded while they viewed four simple movies that did not feature people. In children,...

Parents' Experiences of Health Care for Their Children With Cerebral Palsy.

Although current health care service delivery approaches for children with cerebral palsy recognize the importance of including parents in the health care of their child, we do not yet understand how parents experience this phenomenon. In this study, we used grounded theory methodology to explore parents' experiences of health care for their children with cerebral palsy living in a regional are...

Moroccan parents caring for children with juvenile idiopathic arthritis: positive and negative aspects of their experiences

BACKGROUND Juvenile idiopathic arthritis (JIA) can lead to serious disability in children and adolescents, requiring intensive home care usually provided by parents .These parents must also cope with physical, familial, social and financial constraints.The aim of this study is to evaluate the positive and negative impacts of caregiving on parents to children with JIA, and identify diseases-rela...

Parents' experiences and needs regarding physical and occupational therapy for their young children with cerebral palsy.

OBJECTIVE To explore the experiences and needs of parents of young children (aged 2-4 years) with cerebral palsy (CP) regarding their child's physical and occupational therapy process in a rehabilitation setting. METHODS A qualitative design was used involving semi-structured interviews with 21 parents of young children with CP. Interviews were conducted until informational redundancy was ach...

Respecting children with disabilities--and their parents.